I mentioned in the previous post that Paxton is having some tummy issues. They took several vials of blood last week to test for various causes of his digestive issues and bloody stools; however, all the blood tests came back negative. While overall this is a good thing because it does not lead us towards Celiac Disease (gluten allergy), cystic fibrosis and pancreatic deficiencies. They are certain that he has a malabsorption issue where his body is not absorbing the nutrients in food properly (could explain his lack of desire to eat ANYTHING).
So, where do we go from here? Friday morning he is scheduled for a colonoscopy and an EGD (Esophagogastroduodenoscopy (EGD) is an examination of the lining of the esophagus, stomach, and upper duodenum). I am praying for answers and relief for Paxton. It has been such a hard few weeks. He is super fussy, irritable and we rarely see his sweet smile or hear his amazing laugh. I am praying for easy and quick solutions. I am also praying for peace, patience and guidance as we prepare a 16 month old for a colonoscopy. The prep for this test will be pretty tough on a little one. Nothing more than clear liquids all day Thursday accompanied with myralax should make for one grumpy little guy all day. Poor thing.
While I realize in the scheme of things, this test is nothing major and should be relatively easy, my heart is heavy and my anxiety levels are high. He will have general anesthesia (he will be completely asleep) and I was told I could hold him until he is asleep and I will be holding him when he wakes up. I am thankful for that. At least he won't know that I had to leave him for a little while.
Please pray for Paxton and the doctors. Please pray for guidance and easy solutions.
Fire in the Hole!
1 day ago